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Between state and sickness : the social experience of HIV/AIDS illness management and treatment in Grahamstown, South Africa
Descriptive
TitleInfo
Title
Between state and sickness : the social experience of HIV/AIDS illness management and treatment in Grahamstown, South Africa
TitleInfo
(type = abbreviated)
Title
Social experience of HIV/AIDS illness management and treatment in Grahamstown, South Africa
Name
(type = personal)
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Jones
NamePart
(type = given)
Chaunetta
NamePart
(type = date)
1981-
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Chaunetta Jones
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author
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Guarnaccia
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Peter
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Peter Guarnaccia
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Advisory Committee
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chair
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(type = personal)
NamePart
(type = family)
Hodgson
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(type = given)
Dorothy
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Dorothy Hodgson
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Advisory Committee
Role
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co-chair
Name
(type = personal)
NamePart
(type = family)
Johnson
NamePart
(type = given)
Walton
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Walton Johnson
Affiliation
Advisory Committee
Role
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internal member
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(type = family)
Susser
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Ida
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Ida Susser
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Advisory Committee
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outside member
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Rutgers University
Role
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degree grantor
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Graduate School - New Brunswick
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school
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Text
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theses
OriginInfo
DateCreated
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2014
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2014-05
Place
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xx
Language
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eng
Abstract
This dissertation examines the health and antiretroviral treatment-seeking behaviors among people living with HIV/AIDS in Grahamstown, South Africa. I conducted fourteen months of ethnographic fieldwork from 2008-2009, and use the concept of illness management as a complementary framework to medical anthropological health-seeking models to trace the social experiences of disease among those infected with and affected by HIV/AIDS. My research reveals that entrenched economic inequalities and structural barriers to healthcare, largely a result of apartheid-era policies and delayed HIV/AIDS decision-making at the national level, often force people living with HIV/AIDS to choose between their economic or health security. In communities with extremely high unemployment, like Grahamstown, people living with HIV/AIDS increasingly rely on government disability grants as their sole source of income. My ethnographic findings uncovered a complex dilemma, in which people engage in a range of treatment-seeking practices, including manipulating antiretroviral treatment adherence, to keep their CD4 counts at or below the threshold to remain eligible for a grant. Failed or modified treatment adherence may lead to the development and spread of drug resistant strains of the virus, potentially creating significant individual and public health concerns. Further, using rich life history and illness narratives, I demonstrate how state-prescribed health care models, based largely on standardized, biomedical categories, often belie the ways in which health-seeking processes are highly fluid and nuanced within everyday lived experiences. Future state-prescribed HIV/AIDS treatment programs should remain cognizant of patient treatment and prevention strategies, and develop holistic initiatives that address both health and economic security, particularly in resource-limited communities. This research contributes to medical anthropological scholarship on inequality and health, ethnographic studies on HIV/AIDS in southern Africa, and anthropological analyses of how socio-political and economic forces shape health and treatment-seeking practices.
Subject
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Topic
Anthropology
Subject
(authority = ETD-LCSH)
Topic
HIV infections--Treatment--South Africa--Grahamstown
Subject
(authority = ETD-LCSH)
Topic
HIV-positive persons--Health and hygiene--South Africa--Grahamstown
Subject
(authority = ETD-LCSH)
Topic
Medical anthropology--South Africa--Grahamstown
RelatedItem
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Title
Rutgers University Electronic Theses and Dissertations
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ETD
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TitleInfo
Title
Graduate School - New Brunswick Electronic Theses and Dissertations
Identifier
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rucore19991600001
Identifier
ETD_5483
Identifier
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doi:10.7282/T3K35RZZ
PhysicalDescription
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electronic resource
InternetMediaType
application/pdf
InternetMediaType
text/xml
Extent
1 online resource (xv, 203 pages)
Note
(type = degree)
Ph.D.
Note
(type = bibliography)
Includes bibliographical references
Note
(type = vita)
Includes vita
Note
(type = statement of responsibility)
by Chaunetta Jones
Location
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ETD doctoral
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Rights
RightsDeclaration
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The author owns the copyright to this work.
RightsHolder
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Name
FamilyName
Jones
GivenName
Chaunetta
Role
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RightsEvent
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Permission or license
DateTime
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2014-04-14 00:58:14
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Name
Chaunetta Jones
Role
Copyright holder
Affiliation
Rutgers University. Graduate School - New Brunswick
AssociatedObject
Type
License
Name
Author Agreement License
Detail
I hereby grant to the Rutgers University Libraries and to my school the non-exclusive right to archive, reproduce and distribute my thesis or dissertation, in whole or in part, and/or my abstract, in whole or in part, in and from an electronic format, subject to the release date subsequently stipulated in this submittal form and approved by my school. I represent and stipulate that the thesis or dissertation and its abstract are my original work, that they do not infringe or violate any rights of others, and that I make these grants as the sole owner of the rights to my thesis or dissertation and its abstract. I represent that I have obtained written permissions, when necessary, from the owner(s) of each third party copyrighted matter to be included in my thesis or dissertation and will supply copies of such upon request by my school. I acknowledge that RU ETD and my school will not distribute my thesis or dissertation or its abstract if, in their reasonable judgment, they believe all such rights have not been secured. I acknowledge that I retain ownership rights to the copyright of my work. I also retain the right to use all or part of this thesis or dissertation in future works, such as articles or books.
RightsEvent
DateTime
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2014-05-31
DateTime
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2016-05-30
Type
Embargo
Detail
Access to this PDF has been restricted at the author's request. It will be publicly available after May 30th, 2016.
Copyright
Status
Copyright protected
Availability
Status
Open
Reason
Permission or license
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windows xp
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