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A Heart Set on Living

Descriptive

TypeOfResource
Text
TitleInfo
Title
A Heart Set on Living
Name (authority = orcid); (authorityURI = http://id.loc.gov/vocabulary/identifiers/orcid.html); (type = personal); (valueURI = http://orcid.org/0000-0003-3968-3454)
NamePart (type = family)
Berlin
NamePart (type = given)
Ana
Affiliation
Surgery (New Jersey Medical School, NJMS), Rutgers University
Role
RoleTerm (authority = marcrt); (type = text)
author
Name (authority = RutgersOrg-Department); (type = corporate)
NamePart
Surgery (New Jersey Medical School, NJMS)
Name (authority = RutgersOrg-School); (type = corporate)
NamePart
New Jersey Medical School (NJMS)
Genre (authority = RULIB-FS)
Article, Refereed
Genre (authority = NISO JAV)
Accepted Manuscript (AM)
Note (type = peerReview)
Peer reviewed
OriginInfo
Publisher
Elsevier
DateIssued (encoding = w3cdtf); (keyDate = yes); (qualifier = exact)
2016
Abstract (type = Abstract)
Quality of life is a highly subjective element on which to base health care decision-making. This narrative reflection after the death of a family member uses poetry as a prompt to explore themes related to quality of life—including symptom burden, interpersonal relationships in the face of illness, and the will to live. Through penetrating inquiry and reflection, physicians and other care providers can gain insight into the underlying motivations, loyalties, and abilities that lend meaning to patients’ lives and shape attitudes toward death and dying. By better recognizing and appreciating these factors, clinicians can develop patient-centered quality-of-life constructs that empower them to honor patient goals and preferences at the end of life. Physicians are encouraged to explore poetry and other artistic media to help foster the reflective capacity required to deeply understand and faithfully serve patients in this regard.
Language
LanguageTerm (authority = ISO 639-3:2007); (type = text)
English
PhysicalDescription
InternetMediaType
application/pdf
Extent
9 p.
Subject (authority = LCSH)
Topic
Quality of life
Subject (authority = local)
Topic
Will to live
Subject (authority = local)
Topic
End-of-life care
Subject (authority = LCSH)
Topic
Terminal care
Subject (authority = local)
Topic
Patient-centered decision-making
Subject (authority = LCSH)
Topic
Patient-centered health care
Subject (authority = local)
Topic
Narrative reflection
Subject (authority = local)
Topic
Poetry and medicine
Subject (authority = LCSH)
Topic
Literature and medicine
Extension
DescriptiveEvent
Type
Citation
AssociatedObject
Name
Journal of Pain and Symptom Management
Type
Journal
Relationship
Has part
Reference (type = url)
https://dx.doi.org/10.1016/j.jpainsymman.2015.08.009
Identifier (type = volume and issue)
51(1)
Detail
138-140
DateTime (encoding = w3cdtf)
2016
Extension
DescriptiveEvent
Type
Grant award
AssociatedEntity
Role
Sponsor
Name
New Jersey Medical School Hispanic Center of Excellence, Health Resources and Services Administration
AssociatedEntity
Role
Originator
Name
Ana Berlin
AssociatedObject
Type
Grant number
Name
D34HP26020
RelatedItem (type = host)
TitleInfo
Title
Berlin, Ana
Identifier (type = local)
rucore30178700001
Location
PhysicalLocation (authority = marcorg); (displayLabel = Rutgers, The State University of New Jersey)
NjNbRU
Identifier (type = doi)
doi:10.7282/T308678M
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Rights

RightsDeclaration (AUTHORITY = FS); (ID = rulibRdec0004)
Copyright for scholarly resources published in RUcore is retained by the copyright holder. By virtue of its appearance in this open access medium, you are free to use this resource, with proper attribution, in educational and other non-commercial settings. Other uses, such as reproduction or republication, may require the permission of the copyright holder.
Copyright
Status
Copyright protected
Availability
Status
Open
Reason
Permission or license
RightsHolder (type = corporate)
Name
American Academy of Hospice and Palliative Medicine
Role
Copyright holder
RightsEvent
Type
Permission or license
AssociatedObject
Type
License
Name
Single author license v. 1
Detail
I hereby grant to Rutgers, The State University of New Jersey (Rutgers) the non-exclusive right to retain, reproduce, and distribute the deposited work (Work) in whole or in part, in and from its electronic format, without fee. This agreement does not represent a transfer of copyright to Rutgers.Rutgers may make and keep more than one copy of the Work for purposes of security, backup, preservation, and access and may migrate the Work to any medium or format for the purpose of preservation and access in the future. Rutgers will not make any alteration, other than as allowed by this agreement, to the Work.I represent and warrant to Rutgers that the Work is my original work. I also represent that the Work does not, to the best of my knowledge, infringe or violate any rights of others.I further represent and warrant that I have obtained all necessary rights to permit Rutgers to reproduce and distribute the Work and that any third-party owned content is clearly identified and acknowledged within the Work.By granting this license, I acknowledge that I have read and agreed to the terms of this agreement and all related RUcore and Rutgers policies.
RightsEvent
Type
Embargo
DateTime (point = start); (encoding = w3cdtf)
2015-12-02
DateTime (point = end); (encoding = w3cdtf)
2017-01-28
Detail
Access to this PDF has been restricted at the publisher's request.The publisher, Elsevier, requires a 12 month embargo from the date the article was published. The article in this repository will be publicly available after January 28, 2017.
RightsEvent
Type
Publication notice
Detail
© 2015. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/
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Technical

RULTechMD (ID = TECHNICAL1)
ContentModel
Document
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