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Persistent mourning

Descriptive

TitleInfo
Title
Persistent mourning
SubTitle
parenting a child with Autism Spectrum Disorder (ASD)
Name (type = personal)
NamePart (type = family)
Midoneck
NamePart (type = given)
Melody
DisplayForm
Melody Midoneck
Role
RoleTerm (authority = RULIB)
author
Name (type = corporate)
NamePart
Rutgers University
Role
RoleTerm (authority = RULIB)
degree grantor
Name (type = corporate)
NamePart
School of Social Work
Role
RoleTerm (authority = RULIB)
school
TypeOfResource
Text
Genre (authority = marcgt)
theses
OriginInfo
DateCreated (encoding = w3cdtf); (qualifier = exact)
2015
DateOther (qualifier = exact); (type = degree)
2015-10
CopyrightDate (encoding = w3cdtf); (qualifier = exact)
2015
Place
PlaceTerm (type = code)
xx
Language
LanguageTerm (authority = ISO639-2b); (type = code)
eng
Abstract (type = abstract)
ASD is a complex lifelong developmental disorder characterized by deficits in communication skills, difficulty with social interaction and obsessive/repetitive behaviors that affect a child’s ability to manage stimulus and function within age appropriate expectations. Conventional treatment methods focus solely on the child, relying on parents to be change agents through the administration and implementation of treatment recommendations, failing to consider parent’s capacity to function in the role of a partner in the treatment process. This case study is a phenomenological investigation into the perceptions and experiences of parent’s from three families raising children with ASD. The author considers how feelings of loss, grief, guilt, and shame affect parent’s ability to acknowledge that their child has ASD and understand how their child is impacted, potentially exerting a harmful influence on the parent/child relationship. The implications for clinical practice are to establish a sensitive and honest rapport with parents that fosters their ability to explore the complicated emotions attached to raising a child with ASD and interpret the unique meaning on their lives. As illustrated in the following case vignettes, best outcomes for a child with ASD require that parents recognize and understand their child’s impairments, modify their expectations, and amend family lifestyle to support and accommodate their child’s specific needs. The benefits of direct intervention with parents demonstrated in this study support the need for further research on this topic.
Subject (authority = RUETD)
Topic
Social Work
RelatedItem (type = host)
TitleInfo
Title
Rutgers University Electronic Theses and Dissertations
Identifier (type = RULIB)
ETD
Identifier
ETD_6595
PhysicalDescription
Form (authority = gmd)
electronic resource
InternetMediaType
application/pdf
InternetMediaType
text/xml
Extent
1 online resource (20 p.)
Note (type = degree)
DSW
Note (type = bibliography)
Includes bibliographical references
Subject (authority = ETD-LCSH)
Topic
Parents of autistic children--Case studies
Subject (authority = ETD-LCSH)
Topic
Autistic children--Family relationships
Subject (authority = ETD-LCSH)
Topic
Loss (Psychology)
Note (type = statement of responsibility)
by Melody Midoneck
RelatedItem (type = host)
TitleInfo
Title
School of Social Work DSW Case Studies Collection
Identifier (type = local)
rucore10001900001
Location
PhysicalLocation (authority = marcorg); (displayLabel = Rutgers, The State University of New Jersey)
NjNbRU
Identifier (type = doi)
doi:10.7282/T3PG1TQV
Genre (authority = ExL-Esploro)
ETD doctoral
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Rights

RightsDeclaration (ID = rulibRdec0006)
The author owns the copyright to this work.
RightsHolder (type = personal)
Name
FamilyName
Midoneck
GivenName
Melody
Role
Copyright Holder
RightsEvent
Type
Permission or license
DateTime (encoding = w3cdtf); (qualifier = exact); (point = start)
2015-08-15 11:03:02
AssociatedEntity
Name
Melody Midoneck
Role
Copyright holder
Affiliation
Rutgers University. School of Social Work
AssociatedObject
Type
License
Name
Author Agreement License
Detail
I hereby grant to the Rutgers University Libraries and to my school the non-exclusive right to archive, reproduce and distribute my thesis or dissertation, in whole or in part, and/or my abstract, in whole or in part, in and from an electronic format, subject to the release date subsequently stipulated in this submittal form and approved by my school. I represent and stipulate that the thesis or dissertation and its abstract are my original work, that they do not infringe or violate any rights of others, and that I make these grants as the sole owner of the rights to my thesis or dissertation and its abstract. I represent that I have obtained written permissions, when necessary, from the owner(s) of each third party copyrighted matter to be included in my thesis or dissertation and will supply copies of such upon request by my school. I acknowledge that RU ETD and my school will not distribute my thesis or dissertation or its abstract if, in their reasonable judgment, they believe all such rights have not been secured. I acknowledge that I retain ownership rights to the copyright of my work. I also retain the right to use all or part of this thesis or dissertation in future works, such as articles or books.
RightsEvent
DateTime (encoding = w3cdtf); (qualifier = exact); (point = start)
2015-10-31
DateTime (encoding = w3cdtf); (qualifier = exact); (point = end)
2017-10-30
Type
Embargo
Detail
Access to this PDF has been restricted at the author's request. It will be publicly available after October 30th, 2017.
Copyright
Status
Copyright protected
Availability
Status
Open
Reason
Permission or license
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Technical

RULTechMD (ID = TECHNICAL1)
ContentModel
ETD
OperatingSystem (VERSION = 5.1)
windows xp
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