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How Much Time Do Families Spend on the Health Care of Children with Diabetes?

Descriptive

TypeOfResource
Text
TitleInfo
Title
How Much Time Do Families Spend on the Health Care of Children with Diabetes?
Name (authority = orcid); (authorityURI = http://id.loc.gov/vocabulary/identifiers/orcid.html); (type = personal); (valueURI = http://orcid.org/0000-0003-3584-0846)
NamePart (type = family)
Miller
NamePart (type = given)
Jane E.
Affiliation
Institute for Health, Health Care Policy and Aging Research (IHHCPAR), Rutgers University
Role
RoleTerm (authority = marcrt); (type = text)
author
Name (type = personal)
NamePart (type = family)
Nugent
NamePart (type = given)
Colleen N.
Affiliation
Institute for Health, Health Care Policy and Aging Research (IHHCPAR), Rutgers University
Role
RoleTerm (authority = marcrt); (type = text)
author
Name (type = personal)
NamePart (type = family)
Russell
NamePart (type = given)
Louise B.
Affiliation
Institute for Health, Health Care Policy and Aging Research (IHHCPAR), Rutgers University
Role
RoleTerm (authority = marcrt); (type = text)
author
Name (authority = RutgersOrg-School); (type = corporate)
NamePart
Institute for Health, Health Care Policy and Aging Research (IHHCPAR)
Genre (authority = RULIB-FS)
Article, Refereed
Genre (authority = NISO JAV)
Version of Record (VoR)
Note (type = peerReview)
Peer reviewed
OriginInfo
DateIssued (encoding = w3cdtf); (keyDate = yes); (qualifier = exact)
2016
Abstract (type = Abstract)
Introduction:
Family time caring for children with diabetes is an overlooked component of the overall burden of the condition. We document and analyze risk factors for time family members spend providing health care at home and arranging/coordinating health care for children with diabetes.

Methods:
Data for 755 diabetic children and 16,161 non-diabetic children whose chronic conditions required only prescription (Rx) medication were from the 2009-2010 United States National Survey of Children with Special Health Care Needs (NS-CSHCN). We used generalized ordered logistic regressions to estimate adjusted odds ratios (AORs) of time burden by diabetes, insulin use, and stability of the child's health care needs, controlling for health and socioeconomic status.

Results:
Nearly one-quarter of diabetic children had family members who spent 11+ h/week providing health care at home, and 8% spent 11+ h/week arranging/coordinating care, compared with 3.3% and 1.9%, respectively, of non-diabetic Rx-only children. Time providing care at home for insulin-using children was concentrated in the higher time categories: AORs for insulin-using diabetic compared to non-diabetic Rx-only children were 4.4 for 1+ h/week compared with <1 h/week, 9.7 for 6+ vs. <6 h, and 12.4 for 11+ vs. <11 h (all P < 0.05); the pattern was less pronounced for non-insulin-using children. AORs for arranging/coordinating care did not vary by time contrast: AOR = 4.2 for insulin-using, 3.0 for non-insulin-using children.

Conclusion:
Health care providers, school personnel, and policymakers need to work with family members to improve care coordination and identify other ways to reduce family time burdens caring for children with diabetes.
Language
LanguageTerm (authority = ISO 639-3:2007); (type = text)
English
PhysicalDescription
InternetMediaType
application/pdf
Extent
13 p.
Subject (authority = LCSH)
Topic
Children
Subject (authority = local)
Topic
Care coordination
Subject (authority = LCSH)
Topic
Diabetes
Subject (authority = LCSH)
Topic
Families--Health and hygiene
Subject (authority = LCSH)
Topic
Stress (Physiology)
Subject (authority = LCSH)
Topic
Time
Extension
DescriptiveEvent
Type
Citation
DateTime (encoding = w3cdtf)
2016
AssociatedObject
Name
Diabetes Therapy
Type
Journal
Relationship
Has part
Detail
497-509
Identifier (type = volume and issue)
7(3)
Reference (type = url)
http://dx.doi.org/10.1007/s13300-016-0181-z
RelatedItem (type = host)
TitleInfo
Title
Miller, Jane E.
Identifier (type = local)
rucore30207600001
RelatedItem (type = host)
TitleInfo
Title
Russell, Louise B.
Identifier (type = local)
rucore30207700001
RelatedItem (type = host)
TitleInfo
Title
Nugent, Colleen N.
Identifier (type = local)
rucore30207800001
Location
PhysicalLocation (authority = marcorg); (displayLabel = Rutgers, The State University of New Jersey)
NjNbRU
Identifier (type = doi)
doi:10.7282/T3JD4ZXD
Genre (authority = ExL-Esploro)
Journal Article
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Rights

RightsDeclaration (AUTHORITY = FS); (ID = rulibRdec0004); (TYPE = [FS] statement #1)
Copyright for scholarly resources published in RUcore is retained by the copyright holder. By virtue of its appearance in this open access medium, you are free to use this resource, with proper attribution, in educational and other non-commercial settings. Other uses, such as reproduction or republication, may require the permission of the copyright holder.
Copyright
Status
Copyright protected
Availability
Status
Open
Reason
Permission or license
RightsEvent
Type
Permission or license
AssociatedObject
Type
License
Name
Multiple author license v. 1
Detail
I hereby grant to Rutgers, The State University of New Jersey (Rutgers) the non-exclusive right to retain, reproduce, and distribute the deposited work (Work) in whole or in part, in and from its electronic format, without fee. This agreement does not represent a transfer of copyright to Rutgers. Rutgers may make and keep more than one copy of the Work for purposes of security, backup, preservation, and access and may migrate the Work to any medium or format for the purpose of preservation and access in the future. Rutgers will not make any alteration, other than as allowed by this agreement, to the Work. I represent and warrant to Rutgers that the Work is my original work. I also represent that the Work does not, to the best of my knowledge, infringe or violate any rights of others. I further represent and warrant that I have obtained all necessary rights to permit Rutgers to reproduce and distribute the Work and that any third-party owned content is clearly identified and acknowledged within the Work. By granting this license, I acknowledge that I have read and agreed to the terms of this agreement and all related RUcore and Rutgers policies.
RightsEvent
Type
Publication notice
Detail
© The Author(s) 2016. This article is published with open access at Springerlink.com
RightsHolder (type = personal)
Name
FamilyName
Miller
GivenName
Jane
MiddleName
E.
Role
Copyright holder
RightsHolder (type = personal)
Name
FamilyName
Nugent
GivenName
Colleen
MiddleName
N.
Role
Copyright holder
RightsHolder (type = personal)
Name
FamilyName
Russell
GivenName
Louise
MiddleName
B.
Role
Copyright holder
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Technical

RULTechMD (ID = TECHNICAL1)
ContentModel
Document
CreatingApplication
Version
1.6
DateCreated (point = end); (encoding = w3cdtf); (qualifier = exact)
2016-06-25T11:43:24
DateCreated (point = end); (encoding = w3cdtf); (qualifier = exact)
2016-06-25T11:40:14
ApplicationName
Acrobat Distiller 10.1.8 (Windows)
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