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Assessing the current state of affairs surrounding education on counseling direct-to-consumer testing patients through surveying genetic counseling program directors
Descriptive
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Title
Assessing the current state of affairs surrounding education on counseling direct-to-consumer testing patients through surveying genetic counseling program directors
Name
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Swartz
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Erin
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1996
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Swartz, Erin, 1996-
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author
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Rispoli Joines
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Jessica
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Jessica Rispoli Joines
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Advisory Committee
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chair
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Rutgers University
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School of Graduate Studies
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theses
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2020
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2020-05
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English
Abstract
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Direct-to-consumer (DTC) genetic testing is highly popular but often met with skepticism. Consumers who purchase DTC genetic testing commonly have questions or concerns about their test. Even though they are often not sought out directly, genetic counselors (GCs) may be uniquely poised as the best health care professionals to interface with these consumers. Therefore, genetic counselors should be educated and prepared to counsel consumers of DTC genetic testing. However, most practicing genetic counselors do not feel confident discussing DTC genetic testing with patients. In an effort to evaluate how current genetic counseling students are being educated on DTC genetic testing and whether the next generation of genetic counselors may be better equipped to counsel these patients, we investigated current curricula for genetic counseling training programs by surveying genetic counseling program directors. We found that 95.65% of genetic counseling programs surveyed include some level of education on DTC genetic testing in their programs’ curriculum and about half of programs are assessing the effectiveness of their education. Students are being educated about DTC genetic testing through combinations of course lectures, optional guest lectures, journal clubs, grand rounds, clinical rotations, non-clinical industry rotations, professional meetings, and small group discussions. It appears that genetic counseling students are being exposed to multiple aspects of DTC genetic testing via a variety of methods and settings. However, the effectiveness of this education is unclear because most students are not being assessed on what they are taught. These results suggest that while education on DTC genetic testing is established at most genetic counseling programs, it is neither standardized nor proven effective for training future genetic counselors to advise DTC test consumers.
Subject
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Topic
Genetic counseling
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Microbiology and Molecular Genetics
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Rutgers University Electronic Theses and Dissertations
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Supplementary File: Survey Questions
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1 online resource (iv, 31 pages)
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M.S.
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Includes bibliographical references
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Assessing the currnet state of affairs surrounding education on counseling direct-to-consumer testing patients through surveying genetic counseling program directors
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School of Graduate Studies Electronic Theses and Dissertations
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doi:10.7282/t3-8pdy-c454
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ETD graduate
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Rights
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The author owns the copyright to this work.
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Swartz
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Erin
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Permission or license
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2020-04-17 12:49:23
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Erin Swartz
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Rutgers University. School of Graduate Studies
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Author Agreement License
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I hereby grant to the Rutgers University Libraries and to my school the non-exclusive right to archive, reproduce and distribute my thesis or dissertation, in whole or in part, and/or my abstract, in whole or in part, in and from an electronic format, subject to the release date subsequently stipulated in this submittal form and approved by my school. I represent and stipulate that the thesis or dissertation and its abstract are my original work, that they do not infringe or violate any rights of others, and that I make these grants as the sole owner of the rights to my thesis or dissertation and its abstract. I represent that I have obtained written permissions, when necessary, from the owner(s) of each third party copyrighted matter to be included in my thesis or dissertation and will supply copies of such upon request by my school. I acknowledge that RU ETD and my school will not distribute my thesis or dissertation or its abstract if, in their reasonable judgment, they believe all such rights have not been secured. I acknowledge that I retain ownership rights to the copyright of my work. I also retain the right to use all or part of this thesis or dissertation in future works, such as articles or books.
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2020-05-31
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2021-05-31
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Access to this PDF has been restricted at the author's request. It will be publicly available after May 31st, 2021.
Copyright
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Copyright protected
Availability
Status
Open
Reason
Permission or license
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2020-04-17T12:48:18
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