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Identification of knowledge gaps in adolescent with sickle cell disease
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Hall, Jennifer. Identification of knowledge gaps in adolescent with sickle cell disease. Retrieved from https://doi.org/doi:10.7282/t3-0eg5-0191

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TitleIdentification of knowledge gaps in adolescent with sickle cell disease
NameHall, Jennifer (author); Quinn, Margaret (chair); Manwani, Deepa (outside member); Rutgers University; School of Nursing - RBHS
Date Created2020
Other Date2020-05 (degree)
SubjectSickle cell anemia, Pediatric Nurse Practitioner
Extent1 online resource (77 pages) : illustrations
DescriptionPurpose of Project: The purpose of this project was to assess the current disease knowledge of adolescents with sickle cell disease (SCD) aged 12-17 years in an outpatient hematology clinic and identify gaps in specific knowledge domains. This information was then used to develop an age-appropriate educational intervention which targets the identified common knowledge gaps.

Methodology: Participants completed an online anonymous survey about SCD knowledge which measured knowledge in six domains: genetics, disease pathophysiology, symptoms/management, triggers/prevention, complications, and treatment. The knowledge gaps were identified by the lowest mean scores and an age-appropriate educational intervention was developed to address the domains with the lowest scores.

Results: Knowledge gaps were found in the domains of disease complications and treatment with average scores of 49% and 55%, respectively. Education in these domains was provided in the form a storyboard that will be used with adolescents in the transition process.

Implications for Practice: The results of this survey were used to guide the development of an educational intervention to address the shortcomings in SCD knowledge with the intent of enhancing the transition process. This project may also encourage other programs to consider ways to evaluate and address the needs of adolescent with SCD in their own practice.
NoteDNP
NoteIncludes bibliographical references
Genretheses, ETD doctoral
Persistent URLhttps://doi.org/doi:10.7282/t3-0eg5-0191
LanguageEnglish
CollectionSchool of Nursing (RBHS) DNP Projects
Organization NameRutgers, The State University of New Jersey
RightsThe author owns the copyright to this work.
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