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Identification of knowledge gaps in adolescent with sickle cell disease

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TitleInfo
Title
Identification of knowledge gaps in adolescent with sickle cell disease
Name (type = personal)
NamePart (type = family)
Hall
NamePart (type = given)
Jennifer
NamePart (type = date)
1976-
DisplayForm
Jennifer Hall
Role
RoleTerm (authority = RULIB)
author
Name (type = personal)
NamePart (type = family)
Quinn
NamePart (type = given)
Margaret
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Margaret Quinn
Affiliation
Advisory Committee
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chair
Name (type = personal)
NamePart (type = family)
Manwani
NamePart (type = given)
Deepa
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Deepa Manwani
Affiliation
Advisory Committee
Role
RoleTerm (authority = RULIB)
outside member
Name (type = corporate)
NamePart
Rutgers University
Role
RoleTerm (authority = RULIB)
degree grantor
Name (type = corporate)
NamePart
School of Nursing - RBHS
Role
RoleTerm (authority = RULIB)
school
TypeOfResource
Text
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theses
OriginInfo
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2020
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2020-05
Language
LanguageTerm (authority = ISO 639-3:2007); (type = text)
English
Abstract (type = abstract)
Purpose of Project: The purpose of this project was to assess the current disease knowledge of adolescents with sickle cell disease (SCD) aged 12-17 years in an outpatient hematology clinic and identify gaps in specific knowledge domains. This information was then used to develop an age-appropriate educational intervention which targets the identified common knowledge gaps.

Methodology: Participants completed an online anonymous survey about SCD knowledge which measured knowledge in six domains: genetics, disease pathophysiology, symptoms/management, triggers/prevention, complications, and treatment. The knowledge gaps were identified by the lowest mean scores and an age-appropriate educational intervention was developed to address the domains with the lowest scores.

Results: Knowledge gaps were found in the domains of disease complications and treatment with average scores of 49% and 55%, respectively. Education in these domains was provided in the form a storyboard that will be used with adolescents in the transition process.

Implications for Practice: The results of this survey were used to guide the development of an educational intervention to address the shortcomings in SCD knowledge with the intent of enhancing the transition process. This project may also encourage other programs to consider ways to evaluate and address the needs of adolescent with SCD in their own practice.
Subject (authority = LCSH)
Topic
Sickle cell anemia
Subject (authority = RUETD)
Topic
Pediatric Nurse Practitioner
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Rutgers University Electronic Theses and Dissertations
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ETD_10948
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application/pdf
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text/xml
Extent
1 online resource (77 pages) : illustrations
Note (type = degree)
DNP
Note (type = bibliography)
Includes bibliographical references
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School of Nursing (RBHS) DNP Projects
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rucore10004500001
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NjNbRU
Identifier (type = doi)
doi:10.7282/t3-0eg5-0191
Genre (authority = ExL-Esploro)
ETD doctoral
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Rights

RightsDeclaration (ID = rulibRdec0006)
The author owns the copyright to this work.
RightsHolder (type = personal)
Name
FamilyName
Hall
GivenName
Jennifer
Role
Copyright Holder
RightsEvent
Type
Permission or license
DateTime (encoding = w3cdtf); (qualifier = exact); (point = start)
2020-05-08 13:30:14
AssociatedEntity
Name
Jennifer Hall
Role
Copyright holder
Affiliation
Rutgers University. School of Nursing - RBHS
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Author Agreement License
Detail
I hereby grant to the Rutgers University Libraries and to my school the non-exclusive right to archive, reproduce and distribute my thesis or dissertation, in whole or in part, and/or my abstract, in whole or in part, in and from an electronic format, subject to the release date subsequently stipulated in this submittal form and approved by my school. I represent and stipulate that the thesis or dissertation and its abstract are my original work, that they do not infringe or violate any rights of others, and that I make these grants as the sole owner of the rights to my thesis or dissertation and its abstract. I represent that I have obtained written permissions, when necessary, from the owner(s) of each third party copyrighted matter to be included in my thesis or dissertation and will supply copies of such upon request by my school. I acknowledge that RU ETD and my school will not distribute my thesis or dissertation or its abstract if, in their reasonable judgment, they believe all such rights have not been secured. I acknowledge that I retain ownership rights to the copyright of my work. I also retain the right to use all or part of this thesis or dissertation in future works, such as articles or books.
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Type
Embargo
DateTime (encoding = w3cdtf); (qualifier = exact); (point = start)
2020-05-31
DateTime (encoding = w3cdtf); (qualifier = exact); (point = end)
2022-05-31
Detail
Access to this PDF has been restricted at the author's request. It will be publicly available after May 31st, 2022.
Copyright
Status
Copyright protected
Availability
Status
Open
Reason
Permission or license
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Technical

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2020-05-08T13:23:15
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2020-08-13T10:38:15
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