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Measuring patient empowerment in consumer-initiated genetic testing utilizing a revised short form outcome scale
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Lopez, Enrique. Measuring patient empowerment in consumer-initiated genetic testing utilizing a revised short form outcome scale. Retrieved from https://doi.org/doi:10.7282/t3-bfcc-e552

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TitleMeasuring patient empowerment in consumer-initiated genetic testing utilizing a revised short form outcome scale
NameLopez, Enrique (author); Seymour, Christine (chair); Williams, Nori (outside member); Mahder, Jacquelyn (outside member); Rutgers University; School of Graduate Studies
Date Created2021
Other Date2021-05 (degree)
SubjectConsumer-initiated testing, Microbiology and Molecular Genetics
Extent1 online resource (iv, 28 pages)
DescriptionThe primary aim of this study is to determine the value of telehealth genetic counseling in the setting of consumer-initiated testing by measuring patient empowerment using a revised form of the genomic outcome scale. Data on patient empowerment was collected via surveys. We analyzed responses from 38 individuals. Factors, including ethnicity, age, sex, and motivation for testing were gathered. The majority of patients were White (n = 36, 95%), female (n = 28, 74%), and 45 years of age or older (n = 25, 65%). The greatest motivator for pursuing genetic testing was curiosity about personal risk of genetic disease (n = 17, 45%). Patients were asked how they felt before and after genetic counseling consultations using a set of Likert scales consisting of five identical statements each. A Wilcoxon signed-ranked test was performed, identifying significant (p < 0.05) changes in patient empowerment before and after genetic counseling. An increase in patient empowerment was ascertained in all five subdomains: decisional control, cognitive control, behavioral control, emotional regulation, and hope. This study demonstrates the value of telehealth genetic counseling after receiving a positive genetic test result in a consumer-initiated testing setting. Further research is needed to expand upon patient empowerment followed by genetic counseling in a consumer genetics space.
NoteM.S.
NoteIncludes bibliographical references
Genretheses, ETD graduate
Persistent URLhttps://doi.org/doi:10.7282/t3-bfcc-e552
LanguageEnglish
CollectionSchool of Graduate Studies Electronic Theses and Dissertations
Organization NameRutgers, The State University of New Jersey
RightsThe author owns the copyright to this work.
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