This study aims to explore how patients with type 1 or type 2 diabetes manage their daily personal health information, including (a) the motivators that lead patients to engage in personal health information management (PHIM), (b) the PHIM activities, and (c) affective processes that accompany PHIM activities. These three aspects are integrated into a comprehensive model of PHIM in diabetes and design principles for future interventions are proposed. Thirty people living with type 1 or type 2 diabetes are recruited for this study through snowball sampling and participated in semi-structured one-on-one interviews and photo-documentation. These methods offer rich data that is suitable for this exploratory study. The data from the interviews are transcribed and coded with a framework adopted from the literature and the detailed codes are developed through latent content analysis. The findings reveal 39 categories of motivators, 22 activities, and 12 affective processes that are threaded together by the feedback loop between motivators, activities and affective processes as well as various information items. These findings come together as a comprehensive model of PHIM processes in diabetes and offer a patients’ perspective toward PHIM and its impact on diabetes management. The findings show how PHIM processes in diabetes may connect to and differ from the personal information management processes. Based on the findings, 5 implications for design are proposed to address some of the key issues faced by diabetes patients as they navigate their personal health.
Subject (authority = RUETD)
Topic
Communication, Information and Library Studies
RelatedItem (type = host)
TitleInfo
Title
Rutgers University Electronic Theses and Dissertations
Identifier (type = RULIB)
ETD
Identifier
ETD_7823
PhysicalDescription
Form (authority = gmd)
electronic resource
InternetMediaType
application/pdf
InternetMediaType
text/xml
Extent
1 online resource (xvii, 255 p. : ill.)
Note (type = degree)
Ph.D.
Note (type = bibliography)
Includes bibliographical references
Subject (authority = ETD-LCSH)
Topic
Medical records
Subject (authority = ETD-LCSH)
Topic
Diabetics
Subject (authority = ETD-LCSH)
Topic
Diabetes
Note (type = statement of responsibility)
by Si Sun
RelatedItem (type = host)
TitleInfo
Title
Graduate School - New Brunswick Electronic Theses and Dissertations
Identifier (type = local)
rucore19991600001
Location
PhysicalLocation (authority = marcorg); (displayLabel = Rutgers, The State University of New Jersey)
Rutgers University. Graduate School - New Brunswick
AssociatedObject
Type
License
Name
Author Agreement License
Detail
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