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Changes in perceived knowledge of condition, attitudes toward tics, and overall consumer satisfaction after adolescents with Tourette Syndrome attend the Tim Howard Leadership Academy
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Perry, Madison. Changes in perceived knowledge of condition, attitudes toward tics, and overall consumer satisfaction after adolescents with Tourette Syndrome attend the Tim Howard Leadership Academy. Retrieved from https://doi.org/doi:10.7282/t3-6dfq-ff58

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TitleChanges in perceived knowledge of condition, attitudes toward tics, and overall consumer satisfaction after adolescents with Tourette Syndrome attend the Tim Howard Leadership Academy
NamePerry, Madison (author); Schneider, Kenneth (chair); Colognori, Daniela (member); Rutgers University; Graduate School of Applied and Professional Psychology
Date Created2021
Other Date2021-08 (degree)
SubjectClinical psychology, Tourette syndrome in adolescence, Tic disorders, Tourette Syndrome, Tim Howard Leadership Academy
Extent125 pages
DescriptionThe Tim Howard Leadership Academy (THLA) was a three-day summer program for adolescent participants and young adult mentors with Tourette Syndrome. Among others, a few of the goals of the program were to improve participants’ self-leadership capabilities, enhance their understanding of their conditions, and to improve participants’ overall quality of life. Past studies showed that youth with TS have uniquely negatively impacted peer relationships and decreased quality of life. Few studies have shown the effects of group programs on youth with TS. Those that have been conducted showed promising outcomes. The present study was conducted to examine the potential psychosocial benefits of the 2016 THLA program. This information will inform future THLA programming and can provide data relevant to the development and/or modification of similar, outside programming. The present study analyzed the impact of attending the 2016 THLA on its adolescent participants. The study used archival survey data, collected via an online program (Qualtrics). All participants were voluntary, from the pool of 2016 THLA adolescent attendees. The 2016 THLA adolescent attendees were 13-18 year olds with TS. Research questions included: 1) In what way, if any, did THLA attendance alter the participants’ attitudes toward tics?, 2) Did participants gain knowledge and/or better understanding of their conditions after attending THLA? and 3) Were participants satisfied with their experiences at the THLA and why? Hypotheses regarding these questions were as follows: 1) Participants will report improved attitudes toward tics (e.g. more positive) after attending THLA; 2) Participants will report that they have gained knowledge of their condition after attending THLA; and 3) Participants will report high consumer satisfaction with their experience at THLA. Data were analyzed using descriptive statistics, pre- and post- t-tests, and classical qualitative analysis. The t-test analyses of “knowledge gained” and “attitudes toward tics” indicated consistency with the hypotheses, including that participants exhibit more positive attitudes toward tics after attending THLA and greater perceived knowledge of conditions after attending THLA. The qualitative analyses concluded that participants reported overall consumer satisfaction with THLA programming, highlighting many factors that contributed to a positive consumer experience. Further research is needed to duplicate the findings of this study, to inform future THLA programming and similar outside programming, and to potentially provide alternatives to the resource-intensive individual therapies (e.g. HRT) that are currently the gold standard interventions for TS+.
NotePsy.D.
NoteIncludes bibliographical references
Genretheses
Persistent URLhttps://doi.org/doi:10.7282/t3-6dfq-ff58
LanguageEnglish
CollectionGraduate School of Applied and Professional Psychology Electronic Theses and Dissertations
Organization NameRutgers, The State University of New Jersey
RightsThe author owns the copyright to this work.
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